Recent developments, presentations, awards & more
9 December 2021
New video showing the benefits of our research
We are excited to share a video that our partner Institut Jérôme Lejeune has created. Please check out the video below to learn more about their work as well as how research can serve patients and their family. Versions with English and Spanish subtitles will also be available soon.
14 April 2021
ORE: Europe’s new open-access research platform has launched!
The European Commission has now officially launched “Open Research Europe” (ORE), the open access publishing platform for scientific articles presenting results of Horizon 2020 and future Horizon Europe projects. Let’s take advantage of this opportunity!
21 March 2021
Sunday, 21 March, is World Down Syndrome Day!
Join us on 21 March 2021 to actively advocate for the rights of people with Down syndrome! World Down Syndrome Day (WDSD), 21 March, is a global awareness day which has been officially observed by the United Nations since 2012. The date for WDSD being the 21st day of the 3rd month, was selected to signify the uniqueness of the triplication (trisomy) of the 21st chromosome which causes Down syndrome.
16 March 2021
Save the date – Brain Awareness Week Event on 16 March
The European Brain Council (EBC), the European Federation of Neurological Associations (EFNA), and GAMIAN-Europe are pleased to invite you to save the date for our upcoming Brain Awareness Week event on Patient Engagement in EU-Funded Brain Research Projects, to be held on 16 March 2021 from 12:30-14:00. This event looks to explore the current state of patient engagement in EU-funded brain research projects, looking at the Innovative Medicines Initiative (IMI) and MULTI-ACT as concrete examples and solutions. In discussion with key European Commission officials, we will discuss what has been done and what should be improved in order to guarantee change. Please save the date and keep an eye on your inbox – registration will launch soon! For more info click here.
1 August 2020
Down syndrome COVID-19 on-line survey
The “Trisomy 21 Research Society” (T21RS) is collecting vital information to understand the risks and course of COVID-19 among people with Down syndrome. The goal is to learn if people with Down syndrome are more vulnerable or have a different course of illness related to COVID-19 and if their illness is related to their pre-existing health profile. The survey is available in 5 European languages and can be filled out by carers/family mebers or clinicians.
1 June 2020
EDSA Coronavirus Special Page
GO-DS21 partner “European Down Syndrome Association” (EDSA) has created a Coronavirus Special Page where a list with helpful links to resources from organizations in various countries can be found: To Coronavirus Special Page.
27 May 2020
T21RS Covid-19 Survey
The COVID-19 Survey Report May 2020, of GO-DS21 partner “Trisomy 21 Research Society” (T21RS) is available for download here (PDF).
1 April 2020
Our GO-DS21 partner “Trisomy 21 Research Society” (T21RS) has published some initial recommendations to protect individuals with Down syndrome against COVID-19: To T21RS recommendations.
5 February 2020
Welcome GO-DS21 Consortium and members of the scientific advisory board to the kick-off meeting in Strasbourg, France
GO-DS21 team will invest the next 5 years to help improve the lives of people with DS through the study of mechanisms driving DS comorbidities and the development of innovative clinical guidelines and therapies.