Project News

The 5th General Assembly meeting of the GO-DS21 project took place in Paris from September 7th to 9th, 2023, and it was a fantastic success. We want to express our sincere thanks to all the consortium members and advisors who played a vital role in driving the GO-DS21 project forward with their invaluable contributions. Your commitment and hard work mean the world to us. Let’s keep up the great work and stay motivated as we achieve our goals!

On 09 September 2023, we host the mostly French event COMORBIDIT21: “Improving knowledge about obesity and other comorbidities in Down Syndrome or Trisomy 21: The GO-DS21 network at the service of families and associations”. We aim to live-translate discussions into English. The event is scheduled immediately following the 5th GA Meeting.

Click here to register (open until 03 September 2023)

The GO-DS21 5^th General Assembly meeting is going to take place on 7^th-9^th September 2023 in Paris.

Click here for Registration.

New research from the Institute of Psychiatry, Psychology & Neuroscience (IoPPN) at King’s College London has explored the health experiences of people with Down Syndrome in an effort to better understand how the specific needs of people living with the condition compare to people with other forms of intellectual disability.

The report, published in the Lancet Public Health, is the first of its kind to research multiple morbidity across the lifespan in people with Down Syndrome. Researchers hope that this will help to ensure people living with the syndrome have access to the correct monitoring, support and treatment for health conditions at the right ages.

Click here to read the press release.

Saint Malo, France, November 22-26, 2022 (President, organizer and speaker). (organized by Laurent MEIJER, Masatoshi HAGIWARA & Peter DE DEYN)

Click here to read more.

Watch the GO-DS21 consortium members explain in this video an ambitious pan-European project that investigates the underlying mechanisms and etiology of common Down Syndrome (DS) comorbidities.

Clinicians, pathophysiologists, integrative bioinformaticians, and artificial intelligence computer scientists working to unravel intrinsic and extrinsic mechanisms that impact DS comorbidity (focusing on obesity and intellectual disability). The examination of the pathways and mechanisms involved in comorbidities and multi-morbidities that induce the coexistence of two or more diseases in an individual is of major importance for the effective treatment of patients suffering from DS, obesity, and mental disorders.

Click here to view the video

The Paris Brain Institute (ICM) is currently recruiting a Postdoctoral researcher. Don’t miss out on this great opportunity! For more information on the position and how to apply, please see here.

The new video about the GO-DS21 Clinical Trial in the Jerome Lejeune Institut is available on our #GODS21#youtubechannel now! Watch here:

Researcher Chat this Friday at 3pm with the team from the UK GO-DS21. We’ll be joined by Prof. Andre Strydom, Prof. in Intellectual Disabilities @KingsCollegeLon and Dr. Li Chan, Reader in Molecular Endocrinology at Queen Mary University of London.

Let´s chat here (click on the link bellow)

https://www.facebook.com/DSRFUK/live_videos

The GO-DS21 3^rd General Assembly meeting successfully took place on 8^th-9^th February 2022 via Zoom. Thank you to all consortium members and advisors that help bring the GO-DS21 project forward. Keep up the hard work!

This year, the 4^th International Conference of the Trisomy 21 Research Society will be held in Long Beach, California on 9^th to 12^th of June 2022. Save the date!

The Scientific Committee invites you to contribute to the conference by submitting a proposal for a symposium in basic, clinical and translation research in Down syndrome.

Please find further information regarding the conference, the registration, and the symposia here.

We are excited to share a video that our partner Institut Jérôme Lejeune has created. Please check out the video below to learn more about their work as well as how research can serve patients and their family. Versions with English and Spanish subtitles will also be available soon.

Click here to view video

The European Commission has now officially launched “Open Research Europe” (ORE), the open access publishing platform for scientific articles presenting results of Horizon 2020 and future Horizon Europe projects. Let’s take advantage of this opportunity!

Join us on 21 March 2021 to actively advocate for the rights of people with Down syndrome! World Down Syndrome Day (WDSD), 21 March, is a global awareness day which has been officially observed by the United Nations since 2012. The date for WDSD being the 21st day of the 3rd month, was selected to signify the uniqueness of the triplication (trisomy) of the 21st chromosome which causes Down syndrome.

The European Brain Council (EBC), the European Federation of Neurological Associations (EFNA), and GAMIAN-Europe are pleased to invite you to save the date for our upcoming Brain Awareness Week event on Patient Engagement in EU-Funded Brain Research Projects, to be held on 16 March 2021 from 12:30-14:00. This event looks to explore the current state of patient engagement in EU-funded brain research projects, looking at the Innovative Medicines Initiative (IMI) and MULTI-ACT as concrete examples and solutions. In discussion with key European Commission officials, we will discuss what has been done and what should be improved in order to guarantee change. Please save the date and keep an eye on your inbox – registration will launch soon! For more info click here.

The “Trisomy 21 Research Society” (T21RS) is collecting vital information to understand the risks and course of COVID-19 among people with Down syndrome. The goal is to learn if people with Down syndrome are more vulnerable or have a different course of illness related to COVID-19 and if their illness is related to their pre-existing health profile. The survey is available in 5 European languages and can be filled out by carers/family mebers or clinicians.

Click here to access the on-line survey.

GO-DS21 partner “European Down Syndrome Association” (EDSA) has created a Coronavirus Special Page where a list with helpful links to resources from organizations in various countries can be found: To Coronavirus Special Page.

The COVID-19 Survey Report May 2020, of GO-DS21 partner “Trisomy 21 Research Society” (T21RS) is available for download here (PDF).

Our GO-DS21 partner “Trisomy 21 Research Society” (T21RS) has published some initial recommendations to protect individuals with Down syndrome against COVID-19: To T21RS recommendations.

GO-DS21 team will invest the next 5 years to help improve the lives of people with DS through the study of mechanisms driving DS comorbidities and the development of innovative clinical guidelines and therapies.